The Foundation Fighting Blindness and the Retinal Degeneration Fund support full knowledge and disclosure of our privacy policy. This statement discloses the privacy practices for the Retinal Degeneration Fund’s Web site. This policy addresses...


Your privacy is very important to us. The Foundation Fighting Blindness and the Retinal Degeneration Fund have created this privacy statement in order to demonstrate our respect for our users' personal privacy. The following provides our information gathering, security and disclosure practices for this Web site, , which is a subsidiary of the Foundation Fighting Blindness. We may change this policy at any time by posting a new privacy policy at this location. Please be sure to check this page periodically for changes.
Procedures are in place to help ensure the safety and security of information collected through our Web site. This includes, but is not limited to, appropriate Internet and server (physical) security, application design and managerial practices and principles required by the Foundation Fighting Blindness. For more information, please review Our Commitment To Data Security.
This Web site may contain links to other Web sites, such as other organizations providing services or products to visually impaired people, sponsors, advertisers, and business partners. The Retinal Degeneration Fund is not responsible for the privacy practices or the content of such Web sites to which it links, or any site that provides a link to

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Personal Information

We only collect personally identifiable information you voluntarily provide in order to obtain our customized information and services. Personally identifiable information includes, but is not limited to, first and last name, physical address, e-mail address, phone number, social security number, birth date, credit card information and any other information that itself identifies or when tied to the above information, may identify you as a specific individual. All of the information you provide us is treated as confidential by us. This information is used specifically by the Retinal Degeneration Fund to provide information and/or services to our constituents. Under no circumstance is personal information shared with any other source, or third party, that is not required to deliver the products/services requested by the user, or by law. We do not sell or exchange our constituents' personal information.

Your confidential information is stored by the Retinal Degeneration Fund and is maintained in a highly secure environment, not available to the general public, which includes, but is not limited to, Internet and physical security, as well as strict managerial policies and procedures.

Aggregate/ Non-Identifying Information

When you visit our site, we collect some basic and anonymous information about your computer, including, but not limited to:

We use information collected about your computer and/or browser system to perform routine Web site maintenance and to generate aggregate Web site traffic reports so we can develop site content and features of value to you.

Policy on Cookies

A cookie is a small data file that certain Web sites place on a user’s hard drive when a user visits that site. Cookie files often contain information such as a user ID, which the site uses to track pages of the Web site, visited by the user.

The only personal information a cookie can contain is information that the user supplies.

A user can always refuse cookies by turning them off in the user’s browser. Cookies do not need to be turned on to use the Retinal Degeneration Fund site. The Retinal Degeneration Fund may use cookies to:

  1. Track users on database pages, to determine whether they are a new user or a repeat visitor.
  2. Compile detailed site usage statistics and generate reports by selecting from a range of variables.
  3. Determine when a user links to another site by first visiting

The Retinal Degeneration Fund is not responsible for the cookie policies at other sites that our Web site links to, or sites that link to our Web site.

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Non-personally identifying or aggregate information

The Retinal Degeneration Fund may use non-personally identifying information, such a user's IP address, operating system, browser type, domain names and what Web site the user came from, to help diagnose problems with our server, perform routine Web site maintenance, administer our Web site, and to generate aggregate Web site traffic reports so we can develop site content and features of value to you.

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Third-Party Contractors

We have agreements with third-party contractors, who assist in providing information and services associated to this site. These companies may have access to required personal information in order to fulfill an information request by the user. These relationships are standard and are required to provide this information and services. Third-party contractors will not store or share personal information on our registrant.

In all cases, the Retinal Degeneration Fund requires every third-party contractor to sign a privacy agreement so that they treat your information as confidential as we do. All third-party contractors are required to follow confidentiality policies as defined by the Retinal Degeneration Fund, as well as our Commitment To Data Security.


The Retinal Degeneration Fund has established and is continuing to develop online and offline "partnerships" with both private and public corporations and organizations for the purpose of improving and promoting our information, services, events and charitable fundraising activities. The Retinal Degeneration Fund may from time to time build co-branded sites, co-branded pages, or provide unique services or offers through such partnerships. The Retinal Degeneration Fund will not share any personally identifiable user information with our partners without the user's express permission.

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Information provided by a user through this site shall not be used for any purpose other than that which is clearly indicated by the Web site. Reasonable steps, to ensure information provided is kept secure and confidential, are provided below:


Appropriate physical security measures are followed by the Retinal Degeneration Fund to ensure the protection and safety of our servers. In part, this includes adequate building, server room, server, firewall and server configuration. RD Fund policies and procedures for maintaining physical security are updated as needed, or required as changes in security measures can be effectively and reasonably utilized by the company.


The Retinal Degeneration Fund takes numerous precautions to ensure the confidentiality of information provided by our customers. Strict managerial practices are followed to prevent misuse of information, or the use of information for any reason that is not necessary to perform and deliver products and services through our Web site.

The RD Fund privacy principles include:

  1. A requirement of all third-party contractors to sign a privacy and confidentiality agreement. No information may be used by a third-party, for any reason, except to fulfill an information service or donation requested by you through the Retinal Degeneration Fund Web site; or to investigate a claim against the third-party.
  2. At any time, an RD Fund constituent may choose to "unsubscribe" of our Web site.
  3. The Retinal Degeneration Fund may disclose information provided by a user, if required by law or to investigate a claim against the company.
  4. The RD Fund will conduct managerial, Internet and physical security audits to ensure proper privacy procedures are followed.

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Protecting the privacy of the very young is especially important. For that reason, we never collect or maintain information at our website from those we actually know are under 13, and no part of our website is structured to attract anyone under 13.

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Pursuant to Article 27 of the General Data Protection Regulation (GDPR), The Foundation Fighting Blindness, Inc., has appointed European Data Protection Office (EDPO) as its GDPR representative in the EU. You can contact EDPO regarding matters pertaining to the GDPR by:
- Sending an email to
- Using EDPO’s online request form at
- Writing to EDPO at Avenue Huart Hamoir 71, 1030 Brussels, Belgium

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The Retinal Degeneration Fund welcomes your feedback about this privacy statement and about the Retinal Degeneration Fund’s services. If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, please contact:
Constituent Services Coordinator
Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite 100
Columbia, MD 21046
Toll Free: (800) 683-5555
TDD: (800) 683-5551
Local: (410) 423-0600
Local TDD: (410) 363-7139

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